fa بررسی بار مراقبتی مراقبان خانگی بیماران مبتلا به کووید-19 بهداشت خانواده Family Health پژوهشي-کامل Research(Original) <span style="font-size:12pt"><span style="line-height:92%"><span style="direction:rtl"><span style="unicode-bidi:embed"><span new="" roman="" style="font-family:" times=""><span lang="FA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="color:black"><span style="letter-spacing:-.1pt">سابقه</span></span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="color:black"><span style="letter-spacing:-.1pt"> و هدف:</span></span></span></span> <span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">مراقبت از بیماران مبتلا به</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""> <span style="color:black">کووید-19 بستری در منزل، عمدتاً بر دوش خانواده می‌باشد، که این امر منجر به تحمل فشار مراقبتی می‌گردد</span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">. </span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">بار مراقبتی به درد روانی، مشکلات جسمی، فشارهای مالی و اجتماعی، اختلال در روابط خانوادگی، احساس ناامیدی و سایر نتایج منفی وظایف مراقبت اشاره دارد. </span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">هدف از این م</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">طالعه تعیین بار مراقبتی در مراقبین خانگی بیماران مبتلا به کووید-19 بستری در منزل بود.</span></span></span><span b="" lang="FA" style="font-family:" zar=""><span style="color:#0e101a"></span></span></span></span></span></span></span><br> <span style="font-size:12pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:92%"><span style="direction:rtl"><span style="unicode-bidi:embed"><span new="" roman="" style="font-family:" times=""><span lang="AR-SA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="color:black"><span style="letter-spacing:-.1pt">مواد و روش</span></span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"><span style="letter-spacing:-.1pt">‌</span></span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="color:black"><span style="letter-spacing:-.1pt">ها:</span></span></span></span> <span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">در این پژوهش مقطعی، توصیفی- تحلیلی، 390 مراقب </span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">خانگی</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"> بیماران مبتلا به کووید-19 مراجعه کننده به مراکز درمانی/ بهداشتی شهر گرگان در سال 1400 با روش نمونه‌گیری در دسترس مطالعه شدند. داده‌ها با استفاده از پرسشنامه بار مراقبتی نواک و گست </span></span></span><span dir="LTR" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">(</span></span></span><span dir="LTR" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">CBI)</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">، دارای پنج حیطه و دامنه</span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"> نمره</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"> 120-24 جمع‌آوری شد. برای تحلیل داده از آزمون‌های ناپارامتریک معادل و<b> </b></span></span></span><span dir="LTR" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">SPSS</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"> نسخه 18 استفاده شد.</span></span></span></span></span></span></span></span></span></span><br> <span style="font-size:12pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:92%"><span style="direction:rtl"><span style="unicode-bidi:embed"><span new="" roman="" style="font-family:" times=""><span lang="AR-SA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="color:black"><span style="letter-spacing:-.2pt">یافته</span></span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"><span style="letter-spacing:-.2pt">‌</span></span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="color:black"><span style="letter-spacing:-.2pt">ها:</span></span></span></span> <span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">میانگین نمره کل بار مراقبتی 17/30</span></span></span><span lang="AR-SA" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">&plusmn;</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">52/70 و میانگین حیطه‌</span></span></span><span lang="FA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">های</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black"> وابسته به زمان 6/22</span></span></span><span lang="AR-SA" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">&plusmn;</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">14/90، تحولی 4/88</span></span></span><span lang="AR-SA" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">&plusmn;</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">10/80، جسمانی 4/36</span></span></span><span lang="AR-SA" style="font-size:10.0pt"><span style="line-height:92%"><span style="color:black">&plusmn;9/60</span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar=""><span style="color:black">، </span></span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar="">اجتماعی 2/91</span></span><span lang="AR-SA" style="font-size:10.0pt"><span style="line-height:92%">&plusmn;</span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar="">7/80، احساسی3/84</span></span><span lang="AR-SA" style="font-size:10.0pt"><span style="line-height:92%">&plusmn;</span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar="">9/60 بود. با افزایش سن مراقبان، بار مراقبتی وابسته به زمان تشدید شد. زنان و مراقبان با تحصیلات کم‌تر از دیپلم، بار مراقبتی بیش‌تری را متحمل شدند. بین بار مراقبتی با وضعیت اقتصادی بیمار و وضعیت سلامتی مراقب ارتباط معنی‌دار وجود داشت (0/05</span></span><span lang="AR-SA" style="line-height:92%">></span><span dir="LTR" style="font-size:10.0pt"><span style="line-height:92%">P</span></span><span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar="">).</span></span><span lang="FA" style="line-height:92%"><span style="font-family:"B Zar""></span></span></span></span></span></span></span></span></span><br> <span style="font-size:12pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:92%"><span style="direction:rtl"><span style="unicode-bidi:embed"><span new="" roman="" style="font-family:" times=""><span lang="AR-SA" style="line-height:92%"><span b="" koodak="" style="font-family:"><span style="letter-spacing:-.2pt">استنتاج:</span></span></span> <span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar="">مراقبان خانگی بیماران کووید-19 بستری در منزل، بار مراقبتی در حد متوسط</span></span> <span lang="AR-SA" style="line-height:92%"><span b="" style="font-family:" zar="">را متحمل شدند که می‌تواند اثرات منفی بر سلامت و رفاه آنان بگذارد. ضروری است مراقبین<span style="color:black"> خانگی مورد حمایت روانی- اجتماعی و مالی از جانب سیستم‌های سلامت رسمی جامعه قرار گیرند.<span style="letter-spacing:-.2pt"></span></span></span></span></span></span></span></span></span></span></span> <span style="font-size:12pt"><span style="line-height:135%"><span new="" roman="" style="font-family:" times=""><b><span style="font-size:10.0pt"><span style="line-height:135%"><span arial="" style="font-family:"><span style="letter-spacing:-.2pt">Background and purpose:</span></span></span></span></b> <span style="font-size:10.0pt"><span style="line-height:135%">Caring for patients with COVID-19 at home is mainly the responsibility of the family which leads to high burden of care.</span></span> <span style="font-size:10.0pt"><span style="line-height:135%">The burden of care refers to psychological pain, physical problems, financial and social pressures, disruption of family relationships, feelings of hopelessness, and other negative consequences of care tasks. The aim of this study was to determine the care burden in caregivers of patients with </span></span><span lang="EN" style="font-size:10.0pt"><span style="line-height:135%">COVID</span></span><span lang="EN" style="font-size:10.0pt"><span style="line-height:135%">-</span></span><span style="font-size:10.0pt"><span style="line-height:135%">19 at home.</span></span></span></span></span><br> <span style="font-size:12pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:135%"><span style="text-autospace:none"><span new="" roman="" style="font-family:" times=""><b><span style="font-size:10.0pt"><span style="line-height:135%"><span arial="" style="font-family:">Materials and methods:</span></span></span></b><b> </b><span style="font-size:10.0pt"><span style="line-height:135%">This cross-sectional descriptive-analytical study was carried out in 390 family caregivers of patients with </span></span><span lang="EN" style="font-size:10.0pt"><span style="line-height:135%">COVID</span></span><span lang="EN" style="font-size:10.0pt"><span style="line-height:135%">-</span></span><span style="font-size:10.0pt"><span style="line-height:135%">19 attending medical centers in Gorgan, Iran 2021, using convenience sampling. Caregiver Burden Inventory (CBI) was administered which consists of five domains and a score range of 24-120. Data were analyzed in SPSS V18 applying equivalent non-parametric tests.</span></span></span></span></span></span></span></span><br> <span style="font-size:12pt"><span style="line-height:135%"><span new="" roman="" style="font-family:" times=""><b><span style="font-size:10.0pt"><span style="line-height:135%"><span arial="" style="font-family:">Results:</span></span></span></b><b> </b><span style="font-size:10.0pt"><span style="line-height:135%">The mean total score for care burden was 52.70&plusmn;17.03 and the mean scores for other subscales were as follows: 14.90&plusmn;6.22 for time dependence=, 10.80&plusmn;4.88 for developmental, 9.60&plusmn;4.36 for physical burden, 7.80&plusmn;2.91 for social burden, and 9.60&plusmn;3.84 for emotional burden. As the age of the caregivers increase, the burden of time dependence increased. Women and caregivers with low educational backgrounds perceived a higher burden of care. There was a significant relationship between the burden of care and patient&#39;s economic status and the health status of the caregiver (P<0.05).</span></span></span></span></span><br> <span style="font-size:12pt"><span style="line-height:135%"><span new="" roman="" style="font-family:" times=""><b><span style="font-size:10.0pt"><span style="line-height:135%"><span arial="" style="font-family:">Conclusion:</span></span></span></b> <span style="font-size:10.0pt"><span style="line-height:135%">Family caregivers of patients with COVID-19 at home received a moderate burden of care</span></span> <span style="font-size:10.0pt"><span style="line-height:135%">that could negatively affect their health and wellbeing. Family caregivers need to be supported psychosocially and financially by formal community health systems.</span></span><i><span style="font-size:10.0pt"><span style="line-height:135%"></span></span></i></span></span></span> کووید-19, مراقبین خانگی, بار مراقبتی, خانواده, مراقبت از بیمار COVID-19, caregivers, caregiver burden, family, patient care 75 83 http://jmums.mazums.ac.ir/browse.php?a_code=A-10-4665-37&slc_lang=fa&sid=1 Hakimeh Ebrahimi حکیمه ابراهیمی ebrahimihakimeh2@gmail.com 1003194753284600144113 1003194753284600144113 No MSc Student in Critical Care Nursing, Faculty of Nursing and Midwifery, Golestan University of Medical Sciences, Gorgan, Iran دانشجوی کارشناسی ارشد پرستاری مراقبت های ویژه، دانشکده پرستاری و مامایی، دانشگاه علوم پزشکی گلستان، گرگان، ایران Akram Sanagoo اکرم ثناگو akramsanagoo@gmail.com 1003194753284600144114 1003194753284600144114 No Associate Professor, Faculty of Nursing and Midwifery, Golestan University of Medical Sciences, Gorgan, Iran دانشیار، دانشکده پرستاری و مامایی، دانشگاه علوم پزشکی گلستان، گرگان، ایران Naser Behnampour ناصر بهنامپور behnamour@yahoo.com 1003194753284600144115 1003194753284600144115 No Assistant Professor, Health Management and Social Development Research Center, Golestan University of Medical Sciences, Gorgan, Iran استادیار، مرکز تحقیقات مدیریت سلامت و توسعه اجتماعی، دانشگاه علوم پزشکی گلستان، گرگان، ایران Leila Jouybari لیلا جویباری Jouybari@goums.ac.ir 1003194753284600144116 1003194753284600144116 Yes Professor, Nursing Research Center, Golestan University of Medical Sciences, Gorgan, Iran استاد، مرکز تحقیقات پرستاری، دانشگاه علوم پزشکی گلستان، گرگان، ایران